Related information

End of Life Care Co-ordination: core content

National information standard (ISB 1580)

This national information standard, which specifies the core record content to support the provision of high-quality co-ordinated care at the end of life, was published 20th March 2012.

The standard facilitates consistent recording of information by health and social care agencies and, with the consent of the individual, supports safe and effective management and sharing of information.

The standard was developed by the National End of Life Care Programme and the Department of Health and approved by the Information Standards Board for Health and Social Care. Implementation of the standard will primarily be through Electronic Palliative Care Co-ordination Systems (EPaCCS), and it will ensure the correct and effective use of data in these systems. However, it will also be useful for paper-based co-ordination systems.

Implementation guidance and professional record keeping guidance have been developed to support implementation of the information standard.

What are the requirements of the national standard?

Organisations contracting for new EPaCCS MUST specify compliance to the standard in IT systems and software supplier in contracts issued after 20th March 2012.

It is recommended that providers of services for adults at the end of life review current IT co-ordination systems and plan for migration to conform by 01 December 2013.

Suppliers of IT systems to providers of end of life care services MUST comply with the standard by 01 December 2013.

For further information please view the webpages below:

Download Summary of Data Items 743Kb PDF
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