Contacts
Contact:
Susan Lines
Palliative Care training and development facilitatorCare Services
Organisation:
Leeds Marie Curie Delivering Choice Programme/NHS Leeds
Sycamore Lodge 7a Woodhouse Cliff Leeds LS6 2HF United Kingdom
Tel:
0113 3050525 (Direct)
07894 599226 (Mobile)
Email:
Website:
Case study:
11 May 2010
Palliative Care Website for Leeds
Key points
- A Leeds-based website offers advice and information on all aspects of palliative and end of life care
- The site aims to help those needing to make choices about types of care and their preferred place of care. It includes information for patients, carers, health and social care providers and organisations
- The first phase was launched in October and the second is going live as information is submitted by stakeholder organisations. An evaluation will take place in March 2009.
A Leeds-based website offers advice and information on all aspects of palliative and end of life care.
The site is designed to help those who need to make choices in the various stages of illness about preferred place of care and types of care. It includes information for patients, carers, health and social care providers and organisations with links to other local, national and educational sites.
The website was created as part of the Leeds Marie Curie Delivering Choice Programme (MCDC) in partnership with NHS Leeds, Leeds Teaching Hospitals NHS Trust, Leeds City Council, Yorkshire Ambulance Service NHS Trust, St Gemma’s Hospice and Sue Ryder Care, Wheatfields Hospice and in consultation with patients and carers.
The design and content have been developed in two phases by a steering group with representatives from all partner organisations and patients and carers.
The first phase, which was launched in October 2008, provides general information and advice for patients, carers and staff. It includes sections on the following:
What is palliative care?
Palliative care services in your locality and out of hours services
Frequently asked questions
Patient and carer pages containing, help, advice, information and patients’ and carers’ experience
Information on Leeds MCDC Programme
Information on end of life initiatives
The following areas of phase two of the website are now live:
A monthly palliative care education and training directory
Online booking and pre- and post-course evaluations for palliative care courses
Promotion of palliative care local and national events
Areas which are still under development include:
Online learning opportunities
Teaching resources
Access to policies, documents and guidelines
NHS Leeds has made a commitment to provide the annual funding, governance and administrative resource needed to update and monitor the site on a monthly basis. The business case for a clinically managed network identifies the need for ongoing funding and maintenance of the website. An evaluation of the website will take place in March 2009.
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